Sunday, January 30, 2011

Day 5 at home

Each day, I’m feeling a little better. Last night I slept for over 9 hours! And I only woke up twice to go to the bathroom (a nice break from the normal 4 or 5 times). I’m not feeling as nauseous and each day, I have a little more energy. My blood pressure has been normal, so much so that I was able to cut back on one of the medicines from 2 a day to 1 a day. The cankles are even starting to subside a bit. Unfortunately, my cheeks continue to inflate themselves. I keep telling myself “It’s only 6 months”. And then at my last doctor’s appointment, he said “Maybe a year”. Darn it steroids, I want my old cheeks back!

I have a new prayer request today. One of the medicines I am on (the immunosuppressant) is called CellCept and it is next to impossible to find in Nicaragua apparently. I take 8 of these a day, so I need a lot! (That’s 248 pills a month!) Chase has been to pharmacies all over town looking for it, and it is almost nowhere to be found. He went to the hospital pharmacy and they had enough for today, but tomorrow morning, I’m in trouble. We have one hope – a distributor called Dicegsa, but they aren’t open on Sundays. So will you pray that tomorrow Dicegsa will pull through for us? I’m trying not to stress, which is one of the triggers that can activate and cause lupus to flare up, but it’s difficult when I don’t have enough medicine that I need for 7am the next morning!

(Oh, the nachos Friday night? Amazing. It was good to be re-acquainted with cheese.)

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