Friday, February 11, 2011

To smile and not to smile

It’s been a few days, so I wanted to update you all on how I’ve been doing. I’ve had a few not so great days, and a few really wonderful days. It’s definitely an adventure figuring out what life looks like now! First, I’ll share some things from my “list of things that makes me smile” category:

- Since leaving the hospital, I’ve lost 19 pounds! Can you believe it? Probably most of it is water weight or lost muscle mass, but certainly part of it must be that instead of the on-the-run-usually-fast-food lunches I was eating before, I eat this for lunch (or something like it):

CIMG0216my carrot, apple, fried egg on a piece of toast lunch

- Also, steroids are supposed to make me hungry all the time, but I really don’t feel hungry that often at all. Sometimes I just eat lunch because I need to eat with the pills I need to take. So thankful for this small blessing!

- This one is incredible. As of yesterday, I have rediscovered my ankles! My actual ankles – the ones I had a month ago before I got admitted to the hospital! I can’t tell you how wonderful it is to have them back. (Okay, they are still swollen the slightest bit, but no longer can they be called “cankles”!)

- I went to the Doctor on Wednesday and although my creatinine level went back up a little (from a 4.5 to a 5), he was still pleased with the rest of my tests and happy that I was staying relatively stable. As of yesterday, my steroids have started to decrease (from 75mg a day to 70 mg) for the next 2 weeks, and they upped my Immunosuppressant from 2 grams a day to 3 grams a day. Thank goodness Dicegsa has a large supply for us, as I’ll be going through a box of 50 pills in just over a week now! (My current total pill count is 21 a day!)

The things that don’t make me smile?

- I asked again about going back to work/kids services at my appointment on Wednesday, and the doc said not for at least another month. I haven’t seen the kids or volunteers since the beginning of December, and I’ve been missing their sweet smiles, wanting to give Lindley a giant hug and hear Alma’s adorable laugh as Chase & I trap and tickle her. To find out how Diana is doing and catch up with Bertha. I don’t mean to complain, but 3 months without seeing any of them seems like a cruel punishment to me!

- The bad days. I haven’t had many, but the few I’ve had are, let’s just say, not my favorite. A bad day may include some sort of side effect from one of my medicines – anything from fatigue to nausea to insomnia to all-of-my-skin-is-peeling-off…among other things you don’t want to read about! :)

Really, that’s about it though. As for updated prayer requests, I would appreciate prayer for continued healing for my kidneys. I have another appointment next Wednesday and would like the direction of my creatinine level to go in the opposite direction! Also, pray for wisdom for me as I learn and decide where I should and should not go and what I should and should not do. I want to get out more, but I also want to be careful not to get an infection of any kind. Pray for me to be able to use my time wisely – to be productive, but also diligent to rest (for the sake of my body and my soul). And continue to pray for strength – I’m feeling stronger almost every day, but still have a long way to go!

2 comments:

  1. It's good to hear about your ankles. I pray that you'll begin to actually enjoy the foods you are eating and that they will help your body do better and make you feel better. Your prayer requests are good. Keep on going. Know that you're loved and prayed for.

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  2. Julie, we are keeping up with your status....so glad to hear you are at home and with your hubby and resting. Praying for healing, rest, strength and for you to continue to glorify God in your hardships as we can already see you doing by your attitude and thankfulness....=)

    Lindsay & Jeff Harkins

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